How We Became
One crazy, wonderful life
Wednesday, July 22, 2015
A Helmet for a Warrior
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After we won the fight with the insurance company, the prosthetic company quickly scheduled an appointment for Nicholas to get fitted with h...
Thursday, July 16, 2015
Learning How To Be Sick
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Last week Zachary caught a fairly nasty stomach bug. It started with diarrhea, progressed into a high fever and then ended with throwing up....
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Monday, June 29, 2015
The Fight
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After the prescription for the cranial band was written, I called Cigna to make sure that the equipment would be covered under our plan. Cig...
Wednesday, June 17, 2015
Hydrocephalus Association WALK
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Hydrocephalus is not a well known condition. Unless you've met someone who was willing to talk about it or you know someone who has been...
Tuesday, June 16, 2015
Noggin Update and a Special Brother
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Nicholas had his appointment with the orthotics company that will be making his cranial band yesterday. It was more of an introductory appoi...
Wednesday, June 3, 2015
Under Construction
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Nicholas has had a lot of focus on his head his whole life. The reason is obvious, he has a condition that requires a little more maintenanc...
Monday, May 18, 2015
Here We Go Again
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When Nicholas had his hospital stay a month ago, we had been asked if we had ever noticed his pupil sizes were different. We really hadn...
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