How We Became

September is Hydrocephalus Awareness Month. We knew absolutely nothing when we received Nicholas's in utero diagnosis. I will be giving ...

We always knew cranial band therapy (or helmet therapy) was a possibility for Nicholas. Because he was born with such a large head it was in...

Last week we went on a trip to my home state for my sister's wedding (eek can't believe she's married!). We were understandably ...

After we won the fight with the insurance company, the prosthetic company quickly scheduled an appointment for Nicholas to get fitted with h...

Last week Zachary caught a fairly nasty stomach bug. It started with diarrhea, progressed into a high fever and then ended with throwing up....

After the prescription for the cranial band was written, I called Cigna to make sure that the equipment would be covered under our plan. Cig...

Hydrocephalus is not a well known condition. Unless you've met someone who was willing to talk about it or you know someone who has been...